Thanks so much to everyone that participated in the NAMI walk this year, and of course to those that made donations. We had a devoted team of 25 members that were not deterred by all the rain. NAMI is a wonderful organization and I’m proud to walk in Cailean’s memory every year.

Dexter is getting smarter and smarter and recently he understood that Cailean died. Tonight, while I was giving him and Chase a bath, he said, “Mom, Chase never got to meet Cailean.” Its a concept that I am very aware of, but Dexter has promised me that he will help teach Chase all about his Uncle KK.

It is hard to acknowledge the fact that Cailean has been gone from us for three years and the days just keep accumulating. Isn’t three years enough? Why does it have to be followed by three years and a month and then three years and two months, ever onward, ever worse. Since I became unemployed in November, I have not visited this site very often because I spend much more time at home, and even in his room sometimes, surrounded by his pictures and possessions and his profound absence. It is almost like I am in the website.

Anyway, we were very fortunate indeed to be given such a wonderful son and brother. He was so unique in many ways. almost a higher form of being, devoid of cynicism, eminently loyal and sincere and full of optimism and joy and laughter and beauty and music and talent and all things Boston Celtics. His parents were given title to a near perfect being and, quite simply and painfully, we want him back where he belongs as the center of our universe. Nothing else is acceptable. John/ Dad MAY 2007

“And can it be that in a world so full and busy, the loss of one creature makes a void in any heart, so wide and deep that nothing but the width and depth of eternity can fill it up? These words were written by Charles Dickens many years ago; they are words that echo the feelings that we all share today.

Cailean did experience a boy’s life, much of it very happy as evidenced by our treasured memories and photographs. In one sense he did live a man’s life. Living with Neurological Lyme disease exposed him to horrendous experiences and procedures which eventually shattered his spirit. We can only imagine what he would have been as a man – still a much loved son, brother, relative, and friend and most probably a wonderful husband and father.

Thank you all for continuing to remember and honor Cailean Walker Sheeran – Maureen Sheeran

Hi Everyone,
Its that time of year again…the NAMI walk is quickly approaching. Its hard for me to believe that this will mark 3 years since Cailean died. The walk is on May 19th and we will have a bbq after. Below is a link to join the team. Please don’t worry about racking up the donations, its just nice to get everyone together. Please pass on the invitation to come walk to anyone you know that may be interested.

http://www.nami.org/namiwalks07/MAS/caileanwalker

Thanks~Mariel

Appropriate words escape me this holiday season and so I will turn to words of a song to convey the emotions I feel –
?MY BUDDY?
Life is a book that we study.
Some of its leaves bring a sigh.
There it was written, my Buddy,
that we must part, you and I…

Nights are long since you went away.
I think about you all through the day,
My buddy, my buddy,
Nobody quite so true.
Miss your voice, the touch of your hand-
Just long to know that you understand,
My buddy, my buddy,
Your buddy misses you.

Buddies through all of the days.
Buddies when something went wrong.
I wait alone through the gray days,
missing your smile and your song…

Nights are long since you went away.
I think about you all through the day
My buddy, my buddy,
Nobody quite so true.
Miss your voice, the touch of your hand-
Just long to know that you understand,
My buddy, my buddy,
Your buddy misses you.

To be honest, it has been a difficult and challenging year. We continue to be ever grateful to family and friends (as one very good one recently said, ?chosen family?) who continue to remember our Cailean and reach out to us with love and support. Many thanks to all those who came to Boston to participate in the May NAMI Walk ? as I?ve already stated – you came to honor Cailean – what a tribute! We hope you, and even more, will join us for this event on May 19, 2007.

Cailean will be home for Christmas this year- if only in my dreams, if only in my heart. Merry Christmas, Cailean – Love forever and a day, Mom

It is now one moment before midnight on Cailean’s 20th birthday, and as John has hoped, Miami with Walker , as a key player has won! All the angels in heaven, with Cailean as their point guard, are celebrating!

As his teenage years progressed, Cailean and I shared a mutual love of all things Boston Celtics and also the many joys of playing and watching basketball. It is very unsettling to watch another NBA playoffs without him. This year’s Miami’s team has become “our team” of choice because Cailean Walker’s favorite player – Antoine Walker – is in the finals, even if not with our beloved Celtics. It occurred to me the other night that Miami and Antoine and Cailean might actually celebrate a championship if they can win today on the evening of his 20th birthday. I will try to be stoic regardless of the results but do hope the 2 “WALKERS” prevail.
Two years ago on May 12, I drove home from work after a troubling day due to the tragic death of Nicholas Berg in Iraq. As the car went up our driveway into the woods, I looked up and saw our basketball hoop. It was then that I said to myself “oh good, Buddy and I can play some hoops ” – just before I rounded the bend and saw the 12 cop cars with their lights flashing. This evening I will watch the game on tv but my heart and mind and hopes and disappointments will first rest on that lonely hoop in the driveway where the real games took place. If only we could be out there again. love, DAD. 6/20/06

Today would have been a milestone for Cailean – he would have turned twenty. I often try to picture how he would look at this age. His friends have all matured and developed into wonderful adults over the past two years. Cailean would have been so handsome and would have been a remarkable young man.

I bought a birthday card for Cailean yesterday, wrote him a letter, and left it in a special place. I also sang an off key version of “Happy Birthday”, (including my father’s last line); I trust that Cailean was there to share and, perhaps, laugh at that moment. One of my messages that I included in my note to him was that hope is what is getting me through these very tough times. I’ve recently come upon a few quotes on this topic – their authors are unknown: “Hope is grief’s best music.” “Grief is the price we pay for love.” We are all grieving today for Cailean Walker Sheeran.

Happy Birthday, Cailean. Love forever and a day, Mom

I have not been able to decide when i wanted to write about Cailean. His June birthday and the two dates in May for the second anniversary of his passing and our newly annualized Boston memorial walk/ weekend all meld together . There simply are too many tragic ideas and feelings which pertain and overwhelm. The memorial walk/ weekend at least has the partial uplift of knowing that people felt compelled to attend and did so even though they lived in putnam county, n.y. and las vegas and manhattan and staten island and long island, etc. everything else is on the downslope.

I will end this message with a brief story which happened about 2 months ago. We went to Boston on the weekend that Mariel and Matt and Dexter moved to their new apartment in Watertown. Dexter and I went looking for a supermarket and walked about 8 or 10 extrememly cold blocks in the process. We went into a Middle Eastern bakery hoping to find something resembling Italian cookies. The place was rather large and had numerous aisles full of uninviting exotic foods but no Italian anything. Dexter kept running and laughing from aisle to aisle as I followed him while looking for something to buy. . At some point I realized that I did not know whether he had just made a right or a left turn. I began to run and as I did, I yelled out “Cailean, Cailean, where are you?”. As I rounded the corner, I saw Dexter. Sadly, my inadvertant call to the wrong boy symbolizes our ever- continuing search for someone who cannot be found by simply running or turning left or right or both. There is no aisle or bakery or cookies or Italian food or a walk to the store or any weekend whether in Boston or elsewhere that can be shared with Cailean. There is no one to run after. John/ Dad. 5/25/06.

I was lucky enough to be able to take the day off today and spend time at the park with Dexter. I couldn’t think of anything better to help me get through today. I try not to dread this day, but rather I make myself take a break from the daily grind and appreciate everything and everyone that I have. Cailean… wherever you are…I love and miss you.~Mariel

It is hard to believe that we have been without Cailean for two years now. There are no words which could describe the void that we feel ? some days are better than others and we can sometimes enjoy good times along with the tears. I belong to a bereavement group – the saddest one of all – one that only includes parents who have lost children. Sharing our grief, tears, stories, memories and, yes, even sometimes laughter, – our collective experiences have brought me to the conclusion that it is true what they say ? that God only chooses the most special children ? that those who have been taken away way too early were those who gave far beyond their years. Each, in his or her own way, was quite extraordinary and has left a remarkable legacy behind. Rather than focusing on what we have lost, I?m now trying to concentrate on the gift we were given for seventeen years and will forever honor the very special and noble person Cailean Walker Sheeran was.

May is, I have just discovered, Lyme Disease Awareness Month. We would appreciate it if everybody would use any and all possible situations to make others aware of how devastating this illness really is. We also hope to continue our public awareness efforts so that no other child or person has to endure the agony Cailean experienced.

?To live in the hearts of those you leave behind is never to die?. The validity of this quotation was evidenced last Saturday when fifty people and one dog came by train, plane, automobile, and boat to participate in the NAMI Walk up in Boston. They came for Cailean? they came to honor him ?and I firmly believe that Cailean was also there in spirit. We know that there are many, many others who would have joined us, if at all possible. As I have said in the past, ?What Cailean meant to you, you meant to him?. Thank you all for continuing to honor his memory. The grace of family and friends has certainly helped us and we continue to be ever grateful.

Maureen Sheeran

Hi Mariel,

What a day Saturday! I just wanted to extend a huge thank you for all that you and your family have done for the Walk. I can only imagine what the day means for you and your family. We appreciate your support and hope you can find support in the Walk and in NAMI. You all are amazing, and I mean that from the bottom of my heart. Thank you, and let us know if we can help in any way. Hope to see you in 2007!

Thanks again and take care,
Stephany

Stephany Melton
Director of Affiliate Development
National Alliance on Mental Illness of Massachusetts (NAMI-MA)
400 West Cummings Park Suite 6650
Woburn, MA 01801
781-938-4048
smelton@nami.org

Below’s a message from my father expressing our gratitude to everyone
involved in walking and supporting our team for this year’s NAMI walk.
Everyone worked very hard and it all paid off. NAMI is a wonderful
organization and they were so happy to see our team participate again.
Our team raised over $3300 and had 50 walkers. All the funds and public
awareness raised will help NAMI achieve their goals to fight the stigma
that surrounds mental illness, to build awareness of the fact that the
mental health system in this country needs to be improved and to raise
funds for NAMI so that they can continue their mission.

Cailean struggled and fought so hard. His days were not easy; getting
throught the teenage years is a hard enough task and I get overwhelmed
trying to imagine everything else he had to endure. His illness was
very isolating and often made it difficult for him to see that people
were standing by him trying to find ways to help. It was so nice to
see all of his friends and family get together this weekend. Cailean
had a great sense of humor and loved to joke around, but he was always a
very sensitive, sincere, and compassionate person. I know he would be
touched to see this year’s team. The day that I gave birth to Dexter he
told me he was proud of me and it meant so much. Even 2 years after his
death I find myself being prouder and prouder of him. I am so proud to
say that he is my brother and that his life, and now death have impacted
so many people.

Thank you for all of your support.
Love,Mariel

MAUREEN AND I AND MARIEL AND BRITTANY WANT TO THANK YOU FOR DEVOTING
YOUR TIME AND EFFORTS TO BE WITH US THIS PAST WEEKEND. OUR MEMORIAL FOR
CAILEAN IS OUR WAY OF DECLARING TO THE WORLD HOW WONDERFUL A PERSON,SON,
BROTHER AND FRIEND HE WAS AND STILL IS.

I SINCERELY HOPE THAT WE CAN SEE YOU AGAIN NEXT YEAR ON THE FRIDAY NIGHT
AT FRANCO’S AS WE FURTHER IMPROVE OUR KAOROKE AND BILLIARDS SKILLS IN
THE MIDST OF THE RED SOX NATION. JOHN. 212 551 0793 P.S. PLEASE
FORWARD THIS TO ANYONE I MISSED.

I was checking in on Dr. Brian Fallon’s website as I do from time to time to see if they have any news. I wanted to let everyone who’s helped raise and donate money for their research that they’ve acknowledged us on the website.
Thanks for all the support.

http://www.columbia-lyme.org/flatp/acknowl.html

Hi Everyone,

The walk is a little over two weeks away. It looks like we’re going to have a nice big group; I’m sure Cailean would be touched to know so many people were getting together to honor his memory.

I’m expecting to have a group between 40-50 people. I’m trying to keep track so that we can plan accordingly. If you have heard that any people that should be added or removed (including if people are bringing children) please let me know. I’ve reserved picnic tables and grills at a park that is close to the walk and my house for a bbq afterwards. There are tennis and basketball courts as well as a soccer field if people would like to bring stuff to play.
I’ll be sending out another email soon with directions, etc.

If anyone still needs help with arrangement please get in touch–we’d be happy to help.

Look forward to seeing you all soon,
Mariel

Hi Everyone,

March is quickly coming to a close and before we know it May will be here. Almost 2 years later and I miss Cailean more each day.

This year’s NAMI walk is on May 6th. I have already started a team page and invite everyone to join. Don’t worry about getting donations; lets just concentrate on having a nice day where as many of Cailean’s friends and family can get together and do something special in his memory.

Here’s the link to the team page:
www.nami.org/namiwalks06/MAS/caileanwalker

The walk starts at 11am and we’ll plan on a bbq at our place afterwards.

Get in touch if you have any questions or need help with the registration. If you know someone that I didn’t send this email to that would like to join please forward this message. I don’t think I have everyone’s email addresses.

Love,
Mariel

A day hasn’t gone by when I don’t think about Cailean and yet some days are easier than others. I see his pictures throughout my house and they make me happy and don’t upset me. I come to this website and again I am happy by all the postings. They all make me feel close to him.

Its the all the little things in life that catch me off guard and make me upset because they’re unexpected. A few days ago at work I was sitting at a computer and saw a cd sitting upside down on it. Out of curiosity I picked it up to see what someone else had been listening to not expecting it to be a cd that I had lost a year ago when I started working here. I turned it over and was immediately upset by the sight of Cailean’s handwriting. It was Coldplay’s cd Parachutes that he had copied for me years ago. A person’s handwriting is such a tiny part of their everyday life and yet the sight of it felt so personal and real.

On Oct. 15th I attended the NAMI-MA Convention. Its an annual event they hold in an effort to keep the public informed about mental health issues. Our team ‘Walking for Cailean Walker’ was named the ‘Team of 2005′ and I was given the ‘Captain of 2005′ award. Both last year’s and this year’s walk organizers were touched by our team’s story and all the support.

NAMI has announced the date for the 2006 walk and I have started our team page for those who would like to sign up. I’ll pass on more details as the date gets closer.

WALK DETAILS:

Walk site: NAMI Massachusetts
Location: Artisani Park, Brighton (Boston)
Boston, MA
Date: 5/6/06
Check in: 9:00 am
Start time: 11:00 am
Team: Walking for Cailean Walker
NAMI Affiliate: NAMI Massachusetts

www.nami.org/namiwalks06/MAS/caileanwalker

Thanks again to all the walkers and donators who helped make this year’s walk special for all of us.

Maureen, Brittany and I just spent 5 plus days in Austin, Texas for a music filled vacation. Cailean fortunately went to Austin with us 3 times when he was younger. It’s impossible to attend something like the Austin City Limits Music Festival and not be confronted with his memory in innumerable ways. The roster of “festival acts” read like a random list of his favorite bands: The Allman Brothers, Coldplay, Oasis, Widespread Panic, Blues Traveler and Mike Doughty. He would have been in his glory getting to see all these musicians in one place.

There were many other things that triggered thoughts of him. As we drove past the former store for the Strait Music Company, I remembered that he went there several times to hang out in their guitar room while trying out as many instruments as possible. That is also the store where I bought his fancy mandolin several years ago. I also remenbered him at the Waterloo Ice House where he had ordered hamburgers while we looked at the cds which we had bought next door at Waterloo Records. He loved the Ice House because the walls of the bathroom were covered with baseball cards. When we drove north on Brazos I remembered the many nights we spent at the Northgate Suites Hotel where he had his own room and his own tv remote. Across the parking lot was a mall which had another guitar store where he went by himself practically dominating the practice room. And there was a large sporting goods store where he and I would shoot hoops or practice putt as we easily outdid Bob Stone and David Leff. And he could hang out with those cute and mischievious Stone girls at the pool.

We also went to the Broken Spoke where he had been several times. One year when he was around 7 years old, I wondered where he was – and then found him playing pool with 3 adults in the back room. When we drove to the Oasis on Lake Travis, I remembered the time that Cailean and I got out of the car in order to kick at the anthills which were full of dangerous fire ants. When we drove by the Driskill Hotel, I saw the back alley where he and his dad both took a furtive leak one night at the same time – I guess we both had to go. Down the street is the old Ritz Theatre. One night he was there reading a book while the rest of us watched the Dead Reckoning band give a show. He turned to me and said he had to go to the bathroom. I said ok and pointed to where the men’s room was. He then said ” DAD, PLEASE PUT YOUR FINGER ON THAT WORD UNTIL I COME BACK.” He then came back and began to read again from that word forward.

Ultimately, the appeal of Austin is that of life itself: amazing music and restaurants and great things to do with friends and family. The cruel unfairness of his not being the centerpiece of those five days is unending for he will always was and will be my one and only “Austin Texas Buddy.” How I wish I could put my finger on that word one more time. Thanks Cailean for giving your dad so many wonderful and enduring memories. You would haved loved seeing the Calvin Russell band at the Ice House at 2 in the morning. It was amazing.