Heart & Soul Talent Show

This is an insert that our family prepared for the talent show program. It was written to honor Cailean and inform people about Neurological Lyme Disease.

HEART AND SOUL TALENT SHOW
APRIL 2, 2005

Cailean Walker Sheeran embraced life, family and friends with his Heart and Soul until Neurological Lyme Disease shattered his spirit. Thank you for sharing in this evening dedicated to his treasured memory.

Thanks to a wonderful friend, Patty Scecina, for
dedicating this concert and the song ?Yellow? to
Cailean. Our hearts and souls are touched by all of her efforts, as well as those of all the students and adults who contributed so much time and work to this show.

We would like to take this opportunity to express
appreciation to Alex, Charlie, Daniel, Ryan, and Woody who originated the idea of compiling a compact disc of Cailean?s original music and songs he loved. They worked very hard on this project; ?Sharing Sheeran? is the terrific result. Listening to this CD will be a wonderful way to preserve and honor Cailean?s musical talent. Proceeds from donations received will be sent to Dr. Brian Fallon at the N.Y. Presbyterian Hospital/Columbia Medical Center to be used for research for the diagnosis and treatment of ?Neuro-Lyme?.

If you would like to read or write about our wonderful son and brother, please visit
www.mariel.slowburn.net/cailean/

NEUROLOGICAL LYME DISEASE

Soon after Cailean died we stated that, when time and emotions would allow, we would commit ourselves to spreading public awareness of a most serious, but relatively unknown illness, Neurological Lyme Disease.

According to the National Institute of Neurological Disorders, most individuals with Lyme disease respond well to antibiotics and have full recovery. In a few patients symptoms of persisting infection may continue or recur. Varying degrees of permanent joint or nervous system damage may develop in patients with
late chronic Lyme disease. ?Neuro-Lyme? disease can result in devastating psychological implications. Dr. Fallon?s research on Chronic Lyme has shown that while short term (three to ten week) IV antibiotic treatment will initially help these patients, neural indicators usually relapse within three months. (He is planning on releasing the results of the main portion of his research in September 2005.) In rare cases, some individuals may die from Lyme disease and its
complications. We hope that scientific studies will
eventually result in a successful treatment program so that no other child and family will suffer the consequences of this horrific illness.

Please refer to

http://www.lymeinfo.net/neuropsych.html

for additional information/links.

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